Hotdogs & Beans YUM!

Today is Tuesday April 28th, Reese has gained 1/2 lb since she has started the feeding clinic. Yeah! Gaining weight is always good! She is moving right along and today in her second meal she had hot dogs and beans. Broccoli & cheese looks better pureed than beans & franks! It's all in the taste for Reese. She liked it! She did know it was a change, but was OK with it.....
Reese is up to 16 bites per meal which equals out to approx 2-3 ounces.

We had out family meeting today and talked about the progress.....The feeder take notes after each bite. Notes are taken on acceptance, expels (letting the food fall out of mouth) disruptions(anything that Reese does to try and get attention) gagging, coughing and clean mouth after each bite. All this information is then part on a graph to show the progress. There were days that went up and down. Most of these days involved the eggs! Though Reese is making steps in the right direction, it is slow(all foods need to be pureed) We are OK with this because it is more then what she was doing before this program. This process may take up to 1 year before she can eat age appropriate.

We are dedicated to making this work this time!
Tomorrow is PB&J!!!!!

Begining Week #3 Broccoli & Cheese

Today is Monday April 27th and Reese started broccoli & cheese! Although it was pureed and didn't look pretty, Reese did extremely well! She accepted every bite with NO gagging, coughing and vomiting! This is huge! She seems to be handling all new foods really well! Not the eggs!!!!!!
Reese had an eye appt @ 7:30am and her eyes improved by 20%. Although Reese struggles in the sunlight, she has done really well these past few days in the sun(that is with her sun glasses on) We seem to be getting closer to what is somewhat of a normal life...... Starting to eat & being able to play outside with her brothers in the sun. Life is good!

We wanted to share with everyone that Aunt Mary is a proud GRANDMOM of a beautiful little girl Kelsey Layne (Tim & Meghan) born today weight 9lbs 9oz. We love you! Grandmom & Grandpop Mackey!!!!!! love, trish, john, nicholas, mason & reese