Day #27....Look At Me Stand!

This morning during her first feeding session Reese continued to fight with every attempt to put food in her mouth. As I stood there and watched I couldn't believe all these weeks have passed and we were no further along with feeding. I almost didn't want to believe this to be true. Maybe I was numb to it all by now. Reese finished her first session and went back to the playroom where she would get her tube feeding. I wat
ched her through the window. What a different child she was,playing and moving around. Interacting with the other children...I went to the waiting room and sat with the other mom's for a while. Dianna came to take Reese for therapy around 10:45am. I went into another room and watched her therapy session. This was no better then her feeding session. In fact Dianna had mentioned to me that this was probably the worst therapy session for Reese yet. At 11:30 it was time for another feeding session. This was so bad that Reese got herself so mad and upset she had fallen asleep during the session. I left the clinic and returned for her final session of the day. While I was gone the doctors discussed to makes changes and have Reese go back to a dry spoon and water. The food was taken away again. During this session the feeder would work on saying the word CLOSE and practice closing her lips. Reese would move her mouth and close her lips on her own. The next step was a dry spoon with the words OPEN and present the dry spoon and CLOSE practice closing her lips. This seemed to be working with the movement of her mouth. Reese was doing exacting what they had hoped for. Then the spoon with water. At first, Reese showed resistance. After a few bites she accepted the spoon. It was as if she thought there was going to be food and then when it was only water. She gained Annette's trust back and was fine. Why not the food???? Reese knows how to swallow and has done it already. There was a change in Reese's medication on Monday and the doctors are wondering if this has anything to do with how today went. We will decrease her medication and see what happens.

After a long day at the clinic. I came back to the hotel and bathed Reese. We had dinner with friends in the room. Shortly after our friends left and I played with Reese on the floor. I was working with her and helping her to stand. She did so well, I had a chance to take some pictures! I read a book to Reese and off to sleep she went. What an exhausting day for my little angle! May God Bless you and give you a better day tomorrow!
Sweet Dreams little one!