Thursday, October 25, 2007

Day #19....Holding Out

On the way to the clinic Reese struggled with her reflux. The movement in the car seems to bother her often. Once we were at the clinic, she opened her eyes wide. This was the first day we walked into the clinic with Reese's eyes open. As many of you know, is super sensitive to brightness and natural sunlight. Not to mention she is not a morning person. Reese would like her day to begin after 10:00 am everyday!
I watched her first feeding session, she cried, fought and even held the juice in her mouth with some bites. The non removal approach is still in place with extra chin support. This will help with the tongue sweeping the food to the back of the throat. The harder you push on Reese's mouth the harder she works at keeping her mouth open. I was able to feed her the third and fourth feedings of the day and these were no different. She is not using her tongue the way she needs to but continues to open her mouth with most bites.
The fight and stubbornness in my daughter tells me she will figure it all out someday. Reese still shows signs of discomfort and doctors are figuring out how to help her feel comfortable by adjusting medications.

Tomorrow we will go home for the weekend. Can't wait!

Miss Mimi did Reese's hair today!