Today is Thursday April 23rd and Reese started her day @ 4:30 am! This was not going to be good....We arrive at CHOP every morning at 7:45am. We were sure to be on time today! Starting off with my cup of tea from the Connelly center. We went to the Seashore house to begin our first feeding @ 8:30am. I am still behind the glass watching at this point..... Reese seems to be handling herself well. Whenever the cheese omelet is offered she gives a look like you want me to eat this again! Hopefully that will pass soon..... From there we went back to the Connelly ctr to grab a private room to watch a DVD and hopefully get a few minutes of rest. Reese wasn't having that. We stayed around for story time but she wasn't having that either.....
By this time it was getting close to another feeding. The 11:30 am feeding went OK again. After that we had an appt with speech to evaluate Reese for skills on chewable and drinking from a cup. She was resistant at first but did come around (as she always does) Speech will be involved over the next two weeks with Reese. Speech helps with learning how to bite down when mashed or soft chewable are introduced. This will be some time before Reese reaches this point, but she will need to know how to do it before she can even try a more textured food such as mashed..... Did I mention I almost fell asleep during this evaluation. Reese finished her last session @ 2pm and off to an appointment with Pulmonary. So we left Chop today @ 4:10. Who says it's easier to be a stay at home mom?
Daddy is going with Reese tomorrow.........
3 comments:
Hi Reese,
We are so proud of you. You have come a long way and are doing great. Keep up the good work and continue to build your strength so you can be big and strong like your big brothers.
Love & Kisses,
Aunt Adele & Uncle Tony
Reese, good job little girl, keep up the good work!
Trish, you are far from being a stay at home mom (you need to stay home to do that!) You are Reese's personal assistant, and that has to be the hardest job going, but I have to tell you, Reese (and Nicholas and Mason, too), are lucky to have such a wonderful, caring and loving mommy as you!
4:30 IS a bit too early for anyone. That is just crazy. You sure were the busy bee today. Keep up the hard work little one. Good things are coming and you are the BEST.
love you!!!!!!!!!!!
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