Well, here we are approaching the fourth day of the feeding clinic and I ask myself... Did I think we would be further along? As a mother we want things to happen over night. One more second, minute, hour or even day feels like eternity. Though Reese is still on a dry spoon feeding only. Her progress continues to improve. Reese gets thirty bites per session. The sessions last 15 minutes long. There are three to four sessions per day. Until today, she was able to play the entire time during her feeding sessions. They have changed her feeding sessions to only giving her a toy when she opens her mouth and accepts the spoon. Reese does open her mouth sometimes but most times only enough to bite the spoon. She is rewarded if she makes an attempt. Reese is very unpredictable at this time. We are working on getting her on somewhat of a routine. It might be Reese's routine and not theirs... A routine is what they are working towards. Tube feeding and sleeping and not to forget pooping plays a big part in her routine.
The OT (Occupational therapist) Jessica has been evaluating Reese over the past few days and is working with her positioning. Reese tends to fall into herself. What I mean by that is, she turns her body into yours when holding her. When sitting she looks down, head is down and shoulders are pointed downward. Positioning plays a big part in oral feeding. Reese also suffers from severe reflux which will make her not want to eat. Reese has been chosen to be part of a presentation for the St Josephs feeding clinic on Oct 20th. John and I talked and we have decided this is an opportunity to help our daughter. There will be specialists there observing her. Though this feels like the right ting to do, I cannot help but to feel sad to be away one more day.
I started reading this book called the Mommy Manual written by: Barbara Curtis. This is a great book and I recommend any mommy out there to purchase this book. Thank You! Gerry for lending this book to me to read.
Each one of you have helped in more ways then one, from lunch and gifts to make my trip away feel like home, comments on the blog, e-mails, phones calls to just say Hello!, making a trip up here to see Reese and I, printing and delivering the blog for grandmom(mom) to read Reese's progress, dinners sent up in coolers, dinners made for my boys and John at home, the extras to spend on my boys, telling me you have seen my boys and their smiling faces, helping with the after school pick-ups, rearranging your life to take on three more lives (John, Nicholas & Mason) I could go on and on..... you get what I am trying to say. THANK YOU!!!!! Without YOU this could not be possible!!!!
Love,
the Domico family
XOXOXOXO
The OT (Occupational therapist) Jessica has been evaluating Reese over the past few days and is working with her positioning. Reese tends to fall into herself. What I mean by that is, she turns her body into yours when holding her. When sitting she looks down, head is down and shoulders are pointed downward. Positioning plays a big part in oral feeding. Reese also suffers from severe reflux which will make her not want to eat. Reese has been chosen to be part of a presentation for the St Josephs feeding clinic on Oct 20th. John and I talked and we have decided this is an opportunity to help our daughter. There will be specialists there observing her. Though this feels like the right ting to do, I cannot help but to feel sad to be away one more day.
I started reading this book called the Mommy Manual written by: Barbara Curtis. This is a great book and I recommend any mommy out there to purchase this book. Thank You! Gerry for lending this book to me to read.
Each one of you have helped in more ways then one, from lunch and gifts to make my trip away feel like home, comments on the blog, e-mails, phones calls to just say Hello!, making a trip up here to see Reese and I, printing and delivering the blog for grandmom(mom) to read Reese's progress, dinners sent up in coolers, dinners made for my boys and John at home, the extras to spend on my boys, telling me you have seen my boys and their smiling faces, helping with the after school pick-ups, rearranging your life to take on three more lives (John, Nicholas & Mason) I could go on and on..... you get what I am trying to say. THANK YOU!!!!! Without YOU this could not be possible!!!!
Love,
the Domico family
XOXOXOXO
3 comments:
Have a GREAT weekend! Talk Monday:)
It is so inspiring to read this page! Reese we are behind you 100%!!! Keep working hard and Trish keep being the wonderful mother that you are!!!!
XOXO
The Hart's
Hi girls,
I know you are excited to all be together! Have a great weekend and keep up the good work Reeseie girl. Trish the blog is beautiful you are doing a great job. We will talk over the days to come. Enjoy the boys and much needed family time. Love the maddens
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