Thursday, October 18, 2007

Day #14.... Timing It Just Perfect



Reese continues to move forward with her progress but is definitely working at her own pace. One thing about Reese that I know for a fact, no one can rush this little girl. She has always done things at her own speed. Our little girl has a strong will and shows determination in everything she does. Reese has proven that with many things in her almost one year of life... She will get there in time. As time is very sensitive, we were told today that Reese will need to stay another week or two depending on her progress. Though we already prepared ourselves for this possibility. The words that Reese will need more time and more work for her to reach her goals, is upsetting to both John and I.

Her goal is to eat one ounce of baby food at each meal. This volume is really not allot when you measure it from a first stage baby food jar. If you think about it in terms of a child who has never eaten anything by mouth for one year, it does seem like allot for someone as little as Reese. She continues to accept the spoon with 1/4 amount of apple juice on a baby spoon and one dry spoon for a total of 30 bites per session. Sessions are 4x a day. This is hard work for Reese on any given day.

I stood and watched today with asking so many questions like.... How much pressure on the tongue, where the tongue should be positioned when the spoon enters the mouth, how hard the tongue feels with every acceptance, how long the spoon should be held to the child's mouth, different body actions when the child either refuses or accepts, when to increase volume. These questions are just a few that come to mind. The doctors measure everything so closely before any changes are made and timing plays a critical part in feeding.

We will be here for you, however long it takes! We love you chick-a-pea!

14 comments:

Aunt Adele & Uncle T. said...

Hi Reese & Trish,
You are doing such a great job with the apple juice spoon. How proud are we that you have come so far in just a short time. Keep up the good work. John & Trish hang in there and continue to give her the encouragement & love she needs to get thru this. You are terrific parents and this shows in your love for your little angel.

Love & Kisses,
Aunt Adele & Uncle Tony

Monica said...

REESE & TRISH

I TALK TO MOM LAST NIGHT AND TOLD ME THE GREAT NEWS ABOUT THE APPLE JUICE. THAT IS THE GREAT THING TO HERE. REESE ONE STEP AT A TIME.I AM SO PROUD OF YOU.YOU AND MOM HAVE A GREAT WEEKEND WITH DADDY AND NICHOLAS AND MASON. I WILL BE THINKING OF YOU ON SUNDAY, HAPPY BIRTHDAY!!!!
I WILL SEE YOU SOON.


LOVE & MISS YOU
AUNT MONICA
xoxoxoxoxox

Jen said...

Reese & Trish,

We just wanted to wish Reese a Happy Birthday on Sunday and you are both in our thoughts. Keep up the good work.

Love,

Jen, Jon, Ryan, Valerie, Ethan & Kate

Krista said...

Reese and Trish,

I hope you have a wonderful birthday weekend with your Daddy and brothers. I know how much they miss you.

Krista, Brian and Maura

Sandy said...

Happy Birthday...well almost. You can do this!!!
love you!

Lauren said...

We hope you all have a nice weekend! Reese enjoy your "Apple Juice" Birthday Cake! We will be thinking of you. Keep working hard!

Trish remember, WITH LOVE, WITH PATIENCE and WITH FAITH -- REESE WILL MAKE HER WAY!!!!!

XOXO
The Hart's

Dorothy said...

Hi to all! We have been reading about your journey and know with all the love you have in your family, there is no doubt Reese will do well. We are praying for Reese and your family and the team at St. Joseph's (what amazing and important work they do everyday...please tell them I think they are angels on earth!)
Love, The Foleys
Joe Dorothy Joseph Patrick and Ann

Dorothy said...

Hi to all! We have been reading about your journey and know with all the love you have in your family, there is no doubt Reese will do well. We are praying for Reese and your family and the team at St. Joseph's (what amazing and important work they do everyday...please tell them I think they are angels on earth!)
Love, The Foleys
Joe Dorothy Joseph Patrick and Ann

Doris Strenk said...

Hi John, Trish and Family,
I have been keeping up with the blogs you write every day. I would like to wish Reese a happy birthday! I can't believe she is a year already. She is doing so well with the program. It seems as though the medication is working well also. You are such a wonderful family. I lift you and your family up in prayer that things will continue on the path they are going and he will take care of all of you. My motto is as long as it takes for the program to work. Just hang in there!
God Bless,
Jerry and Doris

Aunt Mary said...

I am always thinking of you Reese. We hope you have a great birthday with your Mom & Dad and brothers Nicholas & Mason, and keep up the great work we know you can do it.

We love you
Uncle George, Aunt Mary
Tim & Meg
Paul and Erin

Aunt Adele & Uncle T. said...

Hi Reese,

Well tomorrow is your big day. Just wanted to wish a very Special Little Girl a very HAPPY 1st BIRTHDAY. We hope you have a wonderful day with your family.

Love & Kisses,
Aunt Adele & Uncle Tony

Denise and John said...

HAPPY HAPPY BIRTHDAY REESE!

It's your first birthday, Reese,
One candle on your cake;
Proud parents stare in wonder
At each new move you make.

We join in celebration,
As this special day arrives,
For Reese has brought pleasure
Into all our lives.

So dig into your presents;
With your big brothers, too.
The reason for this day
Is a special person--you!

Love,
John and Denise

Aunt Amy & Uncle Timmy said...

HAPPY BIRTHDAY REESE! I hope you had a great day. Keep going strong and we can't wait to see u when you come home! We miss you and love you very much!

Newberts said...

Happy Birthday Reese:)!!

I hope you had a Happy Birthday and keep up the good work! You are in our prayers. I am sure you are going to continue your terrific progress with such a great family behind you!
Love Kevin, Lori, Kevin & Ryan
Newbert